Prevention Toolkit > CAPS Instruments

CAPS Instruments

The following surveys have been designed and tested by CAPS scientists and are made available for use by HIV prevention program planners and designers.

Warning: Survey needs vary from population to population and project to project. Please consider carefully the needs of your particular intervention before using one of these instruments.

We encourage researchers and service providers to use these instruments, adapting and modifying as you see fit. Please cite CAPS as the source in any presented or published work, and, if the instruments were modified in any way from their original (as downloaded from the CAPS Web site) please note that in any presentations.

     

Populations

Topics

Focus group 9

Qualitative 7

Scales 101 102 103 104 105

Spanish language 1 2 3 4 10 11 101

STD testing 6

Outside CAPS Links

1. Condom Use Among Hispanics

Instruments:

Scoring: Please read the detailed description of the instruments.
Reliability and/or validity: "Condom use among Hispanic men with secondary female sexual partners" by Barbara VanOss Marin, Cynthia A. Gomez, and Jeanne M. Tschann, printed in Public Health Reports. Also, Gómez, C., Marín, B.V. (1996). Gender, culture, and power: Barriers to safe sex. Journal of Sex Research, 33(4), 355-362.

 

2. Latino Gay/Bisexual Men

The following Spanish survey has been used to assess risk behavior. It was developed through the Hermanos de Luna y Sol program, a culturally-appropriate HIV risk-reduction intervention that targets immigrant, Spanish-speaking gay/bisexual men in San Francisco, CA. See the latest report of the program evaluation for HLS that includes a comparative of behavioral change pre and post intervention as well as barriers and limitations for this instrument.

Instrument:

Scoring: none available
Reliability and/or validity: none available

 

3. Measures of Sexual Attitudes and Behavior of Latino Adults

Instruments:

Scoring:
Reliability and/or validity: Please see a description of the instruments. Marín, B.V., Tschann, J., Gomez, C., Gregorich, S.E. (1998). Self efficacy to use condoms in unmarried Latino adults. American Journal of Community Psychology. 26(1), 53-71.

 

4. National Sexual Health Survey (NSHS)

NSHS is national telephone survey of adults 18 years and older residing in the 48 contiguous states. Measures were developed to assess a wide range of HIV-related and human sexuality topics, including, but not limited to: condom attitudes, condom slips and breaks, HIV-related caregiving, HIV-testing and home testing use, STD histories, perceived risk for HIV and other STDS and optimistic bias assessments, extramarital sex, sexual development, sexual abuse and rape, sexual dysfunctions, various psychological scales (sensation-seeking, machismo), family assessments and history, health and demographics, and a detailed assessment was conducted of sexual activities with each of the respondent’s sexual partners in the past year up to a total of 10 partners, and, in addition, demographic, geographic, and HIV/STD risk characteristics of their sexual partners were determined.

Instruments:

Supporting documentation:

Scoring: Included
Reliability and/or validity: Catania JA, Coates TJ, Stall R, Turner HA, Peterson J, Hearst N, Dolcini MM, Hudes E, Gagnon J, Wiley J, Groves R, (1992). Prevalence of AIDS-related risk factors and condom use in the United States. Science, 258, 1101-1106.


5. Teen Peer Educators

The following surveys are used with the Healthy Oakland Teens project, at an urban, ethnically diverse junior high school. The project's goal is to reduce adolescents' risk for HIV infection by using peer role models to advocate for responsible decision making, healthy values and norms, and improved communication skills.

Instruments:

Scoring: Please read the detailed description of the instruments.
Reliability and/or validity: Ekstrand, ML, Siegel D, Nido V, Faigeles B, Krasnovsky F, Battle R, Cummings G, Chiment E, and Coates TJ. (July, 1996). Peer-led AIDS prevention delays sexual debut among U.S. junior high school students. Oral presentation to the XI International Conference on AIDS, Vancouver, Canada.

 

6. HIV Counseling and Testing in Developing Countries

The following surveys are used with the Voluntary HIV Counseling and Testing Efficacy study was a randomized clinical trial of the effectiveness of HIV counseling and testing for the prevention of new HIV infections. The study was conducted at three sites: Nairobi, Kenya; Dar-Es- Salaam, Tanzania and Port-of-Spain, Trinidad.

Instruments:

Scoring: See variable recodes
Reliability and/or validity: Coates T. J., Grinstead O. A., Gregorich S. E., Heilbron D. C., et al. (2000). "Efficacy of voluntary HIV-1 counselling and testing in individuals and couples in Kenya, Tanzania, and Trinidad: a randomised trial." Lancet V356(N9224): 103-112.

 

7. Qualitative Survey -- HIV Testing and Counseling Among Injection Drug Users

The following qualitative survey was used with Project Access, a qualitative needs assessment commissioned by the California State Office of AIDS and the Centers for Disease Control and Prevention to examine counseling and testing utilization and prevention programs through the perspective of drug-using clients. The instrument is designed to assess: 1) the behavioral, psychosocial and social risk factors that influence high-risk drug users decisions to test for HIV, 2) the service delivery factors that influence high-risk drug users' decision to test for HIV; 3) how high-risk drug users employ HIV testing in personal prevention strategies; 4) and how knowledge of HIV test results affects risk behavior.

Instrument:

Scoring: not applicable
Reliability and/or validity: not applicable

 

8. Self-Report Adherence to Medications

This questionnaire was developed by the AIDS Clinical Trials Group (ACTG) Recruitment, Adherence and Retention Subcommittee, Margaret A. Chesney, Ph.D., and Jeannette Ickovics, Ph.D., Co-Chairs. Please read the two abstracts on adherence in clinical trials and practice.

Instruments:

Scoring:
Reliability and/or validity: Chesney M. A., Ickovics J. R., Chambers D. B., Gifford A. L., Neidig J., Zwickl B. and Wu A. W. (2000). "Self-reported adherence to antiretroviral medications among participants in HIV clinical trials: the AACTG adherence instruments. Patient Care Committee & Adherence Working Group of the Outcomes Committee of the Adult AIDS Clinical Trials Group (AACTG)." AIDS Care 12(3): 255-66.

 

9. Focus Group Questions for Sexual Negotiations

The following two outlines of focus group questions are taken from the following research study: "Sexual Negotiations Among Young Adults in the Era of AIDS." Prepared by Diane Binson, PI. Funded by the Universitywide AIDS Research Program, R94-SF-050.

Instruments:

Scoring: not applicable
Reliability and/or validity: not applicable

 

10. Sexual Behavior for Students at Public Middle Schools

Barbara Marín and Cynthia Gomez at the Center for AIDS Prevention Studies at UCSF and Karin Coyle and Doug Kirby at ETR Associates developed this questionnaire as part of an evaluation study. These questionnaires are available as PDF files both in English and Spanish. Please read a description of the questionnaires.

Instruments:

Scoring: See scales
Reliability and/or validity: Marín, B.V., Coyle, K., Gomez, C., Carvajal, S. , Kirby, D. (2000). Older Boyfriends and Girlfriends Increase Risk of Sexual Initiation in Young Adolescents. Journal of Adolescent Health, 27, 409-418.

 

11. Prevention Services for HIV+ Patients

The following exit survey instruments were developed to assess frequency and variation of prevention services as reported by HIV positive patients at Ryan White-funded clinics across the US.

Scoring:
Reliability and/or validity: Learn more about the methods used.

 

12. Risk behavior for gay men

These questionnaires were used with the Explore project and cover social activiy, attitude, PEP, drug use and sexual behavior.

Instruments:

Scoring: See Data collection section of the Explore Study protocol.
Reliability and/or validity: BA Koblin, MA Chesney, MJ Husnik, et al. High-Risk Behaviors Among Men Who Have Sex With Men in 6 US Cities: Baseline Data From the EXPLORE Study American Journal of Public Health. 2003 93: 926-932.

 

13. Risk behavior and health care for HIV+ injection drug users

These instruments were used to measure the effectiveness of the multi-site INSPIRE Study (VOICE in San Francisco) and cover medication use and adherence, health care utilization, substance abuse, injection behavior, sexual behavior, partner relationships and more.

Instruments:

Scoring:
Reliability and/or validity: Purcell DW, Metsch LR, Latka M, Santibanez S, Gómez CA, Eldred L, Latkin CA; INSPIRE Study Group. Interventions for seropositive injectors-research and evaluation: an integrated behavioral intervention with HIV-positive injection drug users to address medical care, adherence, and risk reduction. J Acquir Immune Defic Syndr. 2004 Oct 1;37 Suppl 2:S110-8.

 

14. Risk behavior and health care for HIV+ injection drug users

These instruments were used with the SUDIS Study and cover medication use and adherence, health care utilization, disclosure, alcohol and drug use, sexual behavior, partner relationships, social support and more.

Instruments:

Scoring: Included in instruments.
Reliability and/or validity: Knight KR, Purcell D, Dawson-Rose C, Halkitis PN, Gomez CA; Seropositive Urban Injectors Study Team. Sexual risk taking among HIV-positive injection drug users: contexts, characteristics, and implications for prevention. AIDS Educ Prev. 2005 Feb;17(1 Suppl A):76-88.

 

15. Women with incarcerated male partners

These instruments were used with the HOME Study.

  • Longitudinal survey - baseline (We administered these to women visiting their incarcerated partners at the prison under study. Women completed the baseline while their partner was incarcerated and they completed the follow-up 30 days after their partner was released from custody.)
  • Longitudinal survey - follow-up
  • Cross-sectional survey (We administered this survey to women visiting incarcerated men at the prison under study before our intervention began and after our intervention ended to measure community impact.)

Scoring:
Reliability and/or validity: See instruments.

 

CAPS Scales

 

101. Ways of Coping

Ways of Coping Questionnaire by Susan Folkman and Richard S Lazarus is used to identify the thoughts and actions an individual has used to cope with a specific stressful encounter.

Instruments:

Scoring: Included in English instrument
Reliability and/or validity: Folkman S., Lazarus R. S., Gruen R. J. and DeLongis A. (1986). "Appraisal, coping, health status, and psychological symptoms." Journal of Personality & Social Psychology 50(3): 571-579.

 

 

102. Female Condom Attitudes Scale (FCAS)

Instrument:

Scoring: Included in article
Reliability and/or validity: Neilands TB, Choi KH. A validation and reduced form of the Female Condom Attitudes Scale. AIDS Education and Prevention. 2002 Apr;14(2):158-71. (PDF of article)

 

103. Coping Self-Efficacy Scale

Instrument:

Scoring: See scoring information.
Reliability or validity: Chesney MA, Neilands TB, Chambers DB, Taylor JM, Folkman S.  A validity and reliability study of the coping self-efficacy scale.  Br J Health Psychol 2006 Sep; 11(3): 421-37.

 

104. SECope - Coping with HIV treatment side effects

Instrument:

  • SECope (PDF - see appendix of article)

Scoring: Included in article.
Reliability or validity: Mallory O. Johnson, Torsten B. Neilands. Coping with HIV Treatment Side Effects: Conceptualization, Measurement, and Linkages. AIDS and Behavior. 2007 Jul;11(4):575-85.

 

105. HIV Treatment Adherence Self-Efficacy Scale (HIV-ASES)

Instrument:

  • HIV-ASES (PDF - see appendix of article)

Scoring: Included in article.
Reliability or validity: Mallory O. Johnson, Torsten B. Neilands, Samantha E. Dilworth, Stephen F. Morin, Robert H. Remien, Margaret A. Chesney. The Role of Self-Efficacy in HIV Treatment Adherence: Validation of the HIV Treatment Adherence Self-Efficacy Scale (HIV-ASES). J Behav Med. 2007 Jun 23.


 

Outside CAPS